Collection of a standardized set of data in a GN Registry is necessary to better describe the care, outcomes and health utilization of GN patients. This data will be stored in PROMIS and is similar to that captured for all renal patients (e.g. CKD, transplant), including demographics, medications, blood pressure, height, weight and comorbidities.
Registration in the BC GN Registry will entitle patients to coverage for CKD medications (such as vitamin D analogues, calcium, iron and ESAs) as well as coverage for immunosuppressive agents listed in the GN formulary.
Aggregate, anonymized data will be available to all nephrologists in the province for personal practice assessment use. As the data steward, the BC Renal Agency will ensure best practices and patient privacy.